Got left eye patched. Don't feel much, in part bc of the numbing drops. But I think having dead/dying corneal nerves has this one benefit

PT says I'm being discharged for noncompliance bc I need downtime to recover from my eye procedure... :/ hm

The Dr said theoretically I can do things like read and draw but I'll get exhausted fast with just one eye. The boredom element sucks.

First membrane going in Friday... I read ppl online say it feels horrible and to just try and sleep through it and try not to move 🥲🥲🥲🥲

Eye dr tomorrow... They were saying something something, need to wait longer because insurance hasn't decided it'll pay for the procedure 😕

Now my hand is numb and hot and sore 🥲🫠

Phlebotomist did a blood draw on my right hand urghhhh. I got a massive haematoma the last time they did that but she insisted.

Mfw they say there'll be a delay bc of insurance. Mfw I can't get a patient advocate. Mfw I've gotta be alone getting this done.

Found out I was being exploited by eye doctor for six years. Feel numb and hopeless. Crashing out.

I feel really scared and alone. Nerves dying off in corneas and it's impossible to navigate medical bureaucracy. Every treatment fails.

Starting conservatively with the amniotic membrane graft hopefully next week.

Crashing out and I can't even just go home, got more bs to deal with. I wish I could just have fun and have normal eyes like everyone else

I'm so tired of constantly being ignored by Drs then later something small manifests into a big problem

It's so hard when everyone around me doesn't understand what I'm going through and are dismissive when I say "corneal nerve dmg & scarring".

Got horrible news at the eye doctor. I just feel so numb. Had a big cry. I don't know. I just want to go home and sleep.

Uhhh back up your files to multiple locations kids 🥲🥴 I recovered it but lost plenty of info 😔

I'm so exhausted man. It's moved up to 3-6 doctor visits a week. I'm like dissociating constantly trying to deal with the buracracy.

Whoooa pt did cervical mobilization yesterday for like 3 min and I feel SO MUCH BETTER?? Like nowhere near 100% but omg...

I wanna do things but ofc it's my right arm that's out. So just laying around ig. I hate this so much. I just want to be normal again.

Constant dead-ends, getting shut out of help, no accommodations 99% of the time even tho it's just requesting email instead of phone...